New York ME/CFS Center

New York ME/CFS Center

Derek Enlander, MD

Mt. Sinai ME/CFS Conference – November 20, 2013

 

 

The second conference at the Mt. Sinai ME/CFS Center was held on Wednesday, November 20, 2013. (The first conference was two years ago.) This year’s conference was an upbeat, almost exuberant affair, a set of fine lectures capped by a question and answer period. Dr. Derek Enlander organized the conference and presided over it with his usual charming and respectful guidance.

Various people, patients mostly, spoke positively to me of “the focus" of the conference and of the variety of information that it presented. Of course the packed room included many of Dr. Enlander’s patients - but there were also patients of Dr. Peterson and, I presume, of Dr. Klimas. One had the feeling that a number of the attendees had not previously attended a conference like this. At the end of the day it seemed as though many people did not want to leave.

A number of factors coalesced in this particular situation. Dr. Enlander, the sponsor and originator of this conference (aided mightily by Dwight Merriman, a major donor), is on the faculty of Mt. Sinai. This important medical center in NYC promotes the Mt. Sinai ME/CFS Center, which, in turn, is a huge platform upon which to operate a conference venue and to project information about this illness ME/CFS.

The speakers, limited to five, included clinicians and researchers. Read more

 

 

"Canary In a Coal Mine" Examines Chronic Fatigue Syndrome

Patients disabled by Myalgic Encephalomyelitis share their pain in documentary film.

 

New "MAF 878 Starter Powder"

MAF 878 Starter Powder

 

Normal Gc protein (also called vitamin-D binding protein), an abundant glyco-protein found in human blood serum, it becomes a molecular switch to activate macrophages when it is converted to its active form, Gc macrophage activating factor (Gc-Maf). Gc protein is normally activated by conversion to Gc-Maf with the help of the B and T cells (bone marrow-made and thymus gland-made white blood cells) in the immune system. But, as researchers explain certain viruses cause a secretion of an enzyme known as alpha-N-acetylgalactosaminidase (also called Nagalese) that completely blocks conversion of Gc protein to Gc-Maf preventing action by the macrophages. This is the way there is disengagement of the immune system, which may leave patients prone to infections or immune system symptoms. Originally, the Gc-Maf was given by a once-weekly injection of minute amounts of Gc-Maf, just 100 nanograms (billionths of a gram), activates macrophages.

 

Nobuto Yamamoto, Director of the Division of Cancer Immunology and Molecular Biology, Socrates Institute for Therapeutic Immunology, Philadelphia, Pennsylvania, says this is "probably the most potent macrophage activating factor ever discovered."

 

Once a sufficient number of activated macrophages are produced, another Gc-Maf injection is not needed for a week because macrophages have a half-life of about six days. After 16-22 weeks Nagalase enzyme reportedly fell to levels found in healthy people. It is not mandatory to measure Nagalase levels, the lab results received were insufficiently quality controlled. NK cells are a better indication.

 

You can order the MAF 878 Starter Powder by Clicking here

 

 

Welcome to Dr. Enlander's Blog

This is a place where patients should feel free to express themselves. It is meant to share your opinions and concerns in order to connect with others who suffer similarly. This should be a welcoming, positive place to gain insightful and helpful information from each other.

Tags

All tags

Blog Stats

  • Total posts(4)
  • Total comments(38)

Forgot your password?